My feet were cold. Warming them up necessitated turning on the light, reaching for a blanket hung over a nearby chair, unfolding it and laying it over top of my bed; a series of actions sure to wake me up so thoroughly I'd never get back to sleep. And it was one of those nights when I'd been awake enough to note the passing of time: one o clock, two o clock, three o clock, etc. So I lay there trying to endure the cold and finally caving and turning on the light to reach for the blanket.
I have a 'firm' rule: no getting out of bed before six a m. Not that it does any good or that I stick to it at all costs, but still, at five a m I am not inclined to get out of bed unless I have to (for example, my bladder in distress). Hence my mind afire. When I say my feet were cold what I really mean is everything below the knee. The cold feet expand, I feel half dead below the knee and I know it is working its way up. Used to be just the feet, now it's not.
I had the thought, we create our own reality. I create my own reality. Not just attitudes and stuff like that but literally. Everything. The world I live in is of my own creation. I think we know that when we are very little, but by the time we reach adulthood it becomes entrenched: reality just is. You can mess with the edges, tweak it here and there, 'improve' yourself as it were, but the hard core of reality just is. And now, at five a m with my mind afire, I see that in old age the edges of reality are starting to curl up and disintegrate, revealing its flimsiness. If I wanted to I could just peel it all away, but I cling to it. Want to prolong it as long as I can, however unsuitable or knocked about or whatever.
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Friday nights two of my boys and I get together online to watch a show and chat. Last night we talked about Hallowe'en. My experience and my oldest son's experience are totally different; he and his wife live for Hallowe'en, I endure it. My son set up a kind of outdoor photo studio and invited all visitors to have their pictures taken in their Hallowe'en costumes. They had hundreds of visitors and he produced hundreds of stunning photos. Really stunning. I am in awe of his talent. The backdrop is black, the colours are brilliant, the costumes amazingly creative. The personalities of the individuals in the photos leap out at you. Whole families out trick or treating together and obviously getting a huge kick out of it. One photo after another of joyful people having a really good time. I guess in their neighbourhood they are renowned, everyone comes by on Hallowe'en.
He was explaining the photographic technique he was trying out that night but it all went over my head, I was just stunned by the quality of the photos. He's shown me other stuff he's done and I am equally stunned by it. Why is he not a professional photographer?
I have dabbled in a variety of creative endeavours but have not developed any one talent the way he has with his photography. In some ways I feel like I have wasted a whole lifetime dabbling instead of getting down to just one thing the way he has. Well, not just one thing, he has a family and a job and a life besides photography, but you know what I mean.
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I called a friend yesterday to ask her help/advice with a landscaping idea I had. She came over in the afternoon and I laid out the idea and walked her around the property to see what she had to say or could do. She said that she could help me with some of it but not all of it, I'd have to get someone with a back hoe or some such for what I had in mind. But she did start to help me get some metal posts out of the ground around my vegetable garden. I had fenced it to keep Hapi out, but I was trying to get rid of the fence because it was more a hindrance than a help now. The metal posts are firmly embedded in the ground after being there for a decade. Nevertheless my friend being a lot stronger than me was able to pry six of them out of the ground, with a little help from me. All within less than an hour.
After she left I collapsed sick. That's what physical effort does to me now, I can make the effort and feel good doing it at the time, but afterward I pay for it in spades. That was part of the mind afire thing at five a m. This is my life now, I'm not seeing a good end to it. Things are only going to get worse. At some point it is going to become unbearable, the bad times outweighing the good times by a lot.
I have dabbled in a variety of creative endeavours but have not developed any one talent the way he has with his photography. In some ways I feel like I have wasted a whole lifetime dabbling instead of getting down to just one thing the way he has. Well, not just one thing, he has a family and a job and a life besides photography, but you know what I mean.
~ ~ ~ ~ ~
I called a friend yesterday to ask her help/advice with a landscaping idea I had. She came over in the afternoon and I laid out the idea and walked her around the property to see what she had to say or could do. She said that she could help me with some of it but not all of it, I'd have to get someone with a back hoe or some such for what I had in mind. But she did start to help me get some metal posts out of the ground around my vegetable garden. I had fenced it to keep Hapi out, but I was trying to get rid of the fence because it was more a hindrance than a help now. The metal posts are firmly embedded in the ground after being there for a decade. Nevertheless my friend being a lot stronger than me was able to pry six of them out of the ground, with a little help from me. All within less than an hour.
After she left I collapsed sick. That's what physical effort does to me now, I can make the effort and feel good doing it at the time, but afterward I pay for it in spades. That was part of the mind afire thing at five a m. This is my life now, I'm not seeing a good end to it. Things are only going to get worse. At some point it is going to become unbearable, the bad times outweighing the good times by a lot.
When I first got sick, over twenty years ago, it lasted for five months. When I told my doc that I was getting better, he was sceptical. He said, Alright, but don't do anything for a year. He meant nothing strenuous or physical: no running, no sports, nothing beyond a bit of walking. I was scared enough by those five months of being sick that I took his advice seriously. Also my life was such that there was not a lot of opportunity for strenuous physical activity, it was a relatively easy thing to give up. And I got twelve good years out of it.
Ironically things went south after I moved to Nova Scotia. On the one hand my life opened up and I had lots of friends and lots of stuff to do, and after twelve years of health I believed I could have it all. My second and third bouts of illness happened after moving here, each one only lasted a couple of months, I still thought I was in the clear. Well, the honeymoon is over. My old doc's advice still stands, but is way harder to follow now.
Ironically things went south after I moved to Nova Scotia. On the one hand my life opened up and I had lots of friends and lots of stuff to do, and after twelve years of health I believed I could have it all. My second and third bouts of illness happened after moving here, each one only lasted a couple of months, I still thought I was in the clear. Well, the honeymoon is over. My old doc's advice still stands, but is way harder to follow now.
3 comments:
It is hard to accept our diminished capacities. I think I'm more in gratitude after my two years of horror. I honestly felt like dying, I was wretched and miserable and so dependent on others and hating it. Clinging on.
I still am not as I was when racing the Tely 10 (6 years ago!!) and have accepted I never will be back to what ever the old normal was.
The new normal is recognizing I tire quickly, there is no medical fix for my wonky back, and my blood courses through my body unevenly and is dependent on permanent medication.
I just re-read "Being Mortal" and it gave me hope and a way forward. I recommend.
I love that you are planning your garden.
XO
WWW
Ah WWW, I wish I was planning my garden. I'm actually trying to make mowing the lawn easier: removing obstacles, reducing area to be mowed, that sort of thing. I can imagine that you are feeling gratitude after two years of severe debilitation, I certainly felt the same after only 5 months of it. But at this point I'm not seeing an end, a time when I can feel gratitude for having survived it all.
I think it's always exciting to see the talents and skills our children as adults develop as you describe your son. I, too, have been surprised at how Halloween has taken on so much significance in adult lives in recent decades. To me Halloween was simply a child's holiday with adults staying in the background, but guess the adults now had such a good time when children they persist in wanting to re-recreate that feeling now that they've grown up, even expand on it.
It's so hard when the mind can be filled with so many ideas, knowledge of what we want to do, know what to do, but the body shouldn't, doesn't, or can't cooperate. I've had some of that for several years and there may be no end in sight. The "new normals" are often temporary only to give way to another "new normal".
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